Last week the girlies had their 6 year well visit. It wasn't the best visit we ever had (for both girls) but probably not the worst. There were a couple of discrepancies with Abby this time around. The doctor found that her tonsils were significantly enlarged, both ears had fluid and her nasal passages were thinned. After hearing that I figured we would just be going back to ENT, not too bad, right? But then she looked in her eyes. And looked and looked and looked. Obviously she was concerned about something she was seeing.
She explained that she saw "something" behind the left eye and she is suspecting increased intracranial pressure. (Just great!) So we may be talking a mild increase in fluid. (Awesome) We could be talking about something bigger than that. (Fantastic) But whatever it is we had to get on it asap.
Since then I have secured appointments in early October for ophthalmology and neuro. In the meantime the pediatrician wrote an RX for a sedated MRI with and without contrast. Copies will be sent to her neurogeneticist so hopefully if there is something emergent someone will pick it up. I am hoping to schedule the MRI for next week. I put the call in to the sedation nurses on Friday and now I have to wait for them to call and screen her.
Here we go again...
Posted by Kristen Fescoe