Life with Rhombencephalosynapsis: Merry (belated) Christmas

Saturday, December 29, 2012

Merry (belated) Christmas

I hope your family is having a truly wonderful holiday season!

2 comments:

MaggieLDecember 30, 2012 at 2:40 AM
So clever Abby. It sounds just great!! Well done.
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KristenDecember 30, 2012 at 6:51 PM
One of those times her high pitch voice pays off. :D
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About Abby

Abby was born with a rare malformation of her cerebellum known as rhombencephalosynapsis. This means that her cerebellum is completely fused at the midline.

She also has structural malformations in her frontal lobe, partial agenesis of the corpus callosum, enlarged 3rd and 4th ventricles, hydrocephalus and a mild chiari malformation.

Very little is known about her condition but what we do know is she is pushing past every limit that has ever been placed on her. Life with RS is not easy but Abby makes it look effortless. She is a tale of success and overcoming obstacles. I live in awe of her every single day.