I am a member of an online group of parents raising children with Rhombencephalosynapsis. It is a wonderful place to compare notes, ask questions, gather information, etc. I consider it a very valuable resource. Recently a new member has joined and she has been a delight. She asks plenty of questions and drums up a TON of great conversation with all of the members. Many of her questions have lead to some thoughts about great potential posts. They are all things that new RS parents might want to know about.
So I am going to try to spend some time posting about these questions and our experiences with these topics.
The first topic was when our children started walking. Here is our experience...
Abby didn't meet any of her milestones on time. NOT ONE! We had her in physical therapy from the time she was 4 months old because of this. By the time she was 18 months she was FINALLY crawling, rolling over and starting to stand up. It was a long road to get her there but we got there. Unfortunately there was minimal effort to walk.