I mentioned this a few posts back but I wanted to repost it here. If anyone would like to share a story, introduce their RS child or write a blog post let me know. If you don't love writing I would be happy to help compose the post. It might be helpful for other RS families to read about different kids with RS other than just Abby.
If you want to write or submit something just submit a comment or send me an e-mail!
I've been reading your blog for several months now and I feel like I already know you :) Thank you for sharing your story. My daughter also has rhombencephalosynapsis. Her name is Simone and is 15 months old. She was born with several other birth defects as well as rhombencephalosynapsis. I wanted to get in touch with you and then I saw this post. I'm very interested in connecting with other RS parents and sharing our story as well.
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