And what in the hell do you do with information like this???
Her diagnosis is one in billions. In the most conclusive study on her diagnosis only 9 subjects participated, it was not longitudinal and one of the subjects dropped out. As of 2002 only 40 cases of this anomaly had been diagnosed conclusively with MRI. So we have no idea what the future holds for her. We have no idea what caused this. We have no idea whether or not we could have another child with this (and mind you Abby has milder symptoms than most). It's scary. It's frustrating. But it's at least somewhat of an answer.
Pretty soon I will be putting together a laundry list of her symptoms, issues and "special features". Keep an eye out. :D