Life with Rhombencephalosynapsis: Only Abby...

Only a child with Rhombencephalosynapsis would ask her mother to tape a reenactment of a fall.

This kid kills me.

About Abby

Abby was born with a rare malformation of her cerebellum known as rhombencephalosynapsis. This means that her cerebellum is completely fused at the midline.

She also has structural malformations in her frontal lobe, partial agenesis of the corpus callosum, enlarged 3rd and 4th ventricles, hydrocephalus and a mild chiari malformation.

Very little is known about her condition but what we do know is she is pushing past every limit that has ever been placed on her. Life with RS is not easy but Abby makes it look effortless. She is a tale of success and overcoming obstacles. I live in awe of her every single day.

Life with Rhombencephalosynapsis

Thursday, July 23, 2015

Only Abby...

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