This is a poem that was edited by a member of our RS group (Ashlee Lyons Kuhl) and it was perfect for our Mothers Day post.
It can happen during utero, and you may not find out until after birth.
The news that makes you tremble, the news that shakes the earth.
"We see a distinct problem ma'am, there's an issue with the brain.
We're not sure your child's chances ma'am, the condition, we normally don’t maintain"
You think "Why me? Why us?" As you try to choke back tears.
Your world crashing around you, while you're consumed by your worst fears.
That sharp pain in your chest. The heart break, like a knife.
Watching your precious child, fight so hard for their life.
The first few months are brutal, You walk around like a zombie.
Endlessly wondering "Will my baby get to call me mommy?"
"Don't worry, it will get better" Is something you can't stand to hear.
It feels like everything is getting worse! The end, it feels so near.
Then suddenly the days seem to get a little brighter.
As you stare with loving eyes at your precious little fighter.
You've never been so proud of one single little soul.
Gradually reaching milestones and accomplishing their goals.
A RS moms journey is one that never ends.
Filled with support and compassion of other RS mom friends.
We all love a little deeper and care a little more.
Reminding ourselves everyday of how much we can be thankful for.
We were given this life for a reason and at times it can get rough.
But we use our kids as examples of how to remain tough.
For us, strength is not a choice, it's a lifestyle we have to lead.
It's what keeps us going, and it's what our RS child needs!