Thursday, November 17, 2011

My Flappy Girl

When people hear that Abby "flaps", "head rolls" and "tics" they probably don't have an accurate idea of what that means. It varies throughout the day but I took a minute to take some video of her watching TV before bed. You can see a lot of the spastic movements she has. Oddly enough, she doesn't seem to mind it one bit.

1 comment:

  1. Hi Kristen, I am so happy you put together this blog. My daughter also has Rhombencephalosynapsis. I cried when I watched Abby's videos, she is just like my daughter.

    Look forward to talking to you.