For those interested HERE is a link to another blog about RS. It is a beautiful blog called Rooms of Jade. Check it out. There is even a forum for parents of kids with RS.
My daughter has rhombencephalosynapsis too (American Emma in Rooms of Jade)...in fact Emma has the Gomez-Lopez-Hernandez Syndrome that is associated with RS as well as a condition called TAR Syndrome.
Was your Abby diagnosed with RS in the womb? One of your posts mentioned something about being told before she was born that she had problems?
Hi Kristen,
ReplyDeleteMy daughter has rhombencephalosynapsis too (American Emma in Rooms of Jade)...in fact Emma has the Gomez-Lopez-Hernandez Syndrome that is associated with RS as well as a condition called TAR Syndrome.
Was your Abby diagnosed with RS in the womb? One of your posts mentioned something about being told before she was born that she had problems?
Abby is adorable!
JoAnn