Life with Rhombencephalosynapsis: The amazing world of blogs!

Friday, June 5, 2009

The amazing world of blogs!

Would you all believe that another Mom of a child with RS found me through this blog... ALREADY! Amazing.

1 comment:

UnknownAugust 29, 2009 at 1:11 AM
good morning, I have this illness me even rare orphan. your blog is very interesant possible would be you it that I put it in my forum it would allow to introduce illness across borders. I am in France and I am 44 years old

I think that we know another forum that of Kate and Cassandra

friendship
Joelle grenouille13@hotmail.com
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About Abby

Abby was born with a rare malformation of her cerebellum known as rhombencephalosynapsis. This means that her cerebellum is completely fused at the midline.

She also has structural malformations in her frontal lobe, partial agenesis of the corpus callosum, enlarged 3rd and 4th ventricles, hydrocephalus and a mild chiari malformation.

Very little is known about her condition but what we do know is she is pushing past every limit that has ever been placed on her. Life with RS is not easy but Abby makes it look effortless. She is a tale of success and overcoming obstacles. I live in awe of her every single day.