Not sure if any of my old followers are still hanging around. It has been a year and a half since the last post. Not that I haven't had anything to say, just not enough time to say it.
Both girls have started Middle School and have signed up for a variety of different clubs. Grace decided to sign up for Rennaisaince Club, which is a club that basically does kind things for others. Recently, Grace decided to put RS as one of the causes to fundraise for at their annual charity walk. With a little explaining the what and why, so got approval. So she raised some money to benefit the great work that the team at the University of Washington is doing.
Fast forward a few weeks when Brian decided he is going to do a Polar Bear Plunge to raise money and awareness for RS. As he was putting together the GoFundMe page, he visited this blog to get information and pictures.
Over the course of the past two days, we have gone on an Abby / Rhombencephalosynapsis history lesson. As we looked back at our older posts both lamenting and celebrating, it is astonishing how far we have come.
When people hear about Abby's diagnosis now that she is 11, the most common response is "I had no idea she had anything." Considering there was a time when we had no idea if she would have any normalcy, it is quite incredible.
It's amazing to think what 2019 me would tell 2007 me had she been given the chance. Maybe that will be fodder for an upcoming post. Stay tuned. If you are there. :D
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