Monday, March 28, 2011

Looking back

Recently I was going through some old bookmarks in my computer. I stumbled across and old board that I used to frequent for women pregnant with babies who have ventriculomegalies. It got me to thinking about those early days. The days right after we found out there was "something wrong" with Abby. It was so scary and so painful and SO stressful. I barely slept in those first couple of weeks. I opted instead to spend hours and hours researching possible causes, treatments, prognosis and outcome. I e-mailed anyone I could think to ask questions. I blogged. It was a dark time in our life.

Now I sit here the mother of two precocious four year olds and most of the time we are like any other family with typical kids. It is almost hard to remember life in those days with all of the unknown. I don't think I could have or would have predicted that life would turn out this way. That we would spend hours and hours and hours in therapy but that Abby would turn out so perfectly.

It makes me wish there was more I could do to tell our story. To show that even in those darkest hours there is hope. There is always potential. That the information the doctor presents is usually the worst case scenario NOT the likely outcome. It's why I blog and write and share whenever I can. I just wish there was more we could do to help those who are going through what we once were.


  1. I remember when I was pregnant and Spencer was diagnosed with Ventriculomegaly and I researched it online, it scared the crap out of me with all the "Could be's." One of our Maternal Fetal Medicine docs told us it was so bad that she didn't think he would live past 2 months and I should abort. I asked her to leave and never walk back into a room that I was in. Finally I had to stop researching online because I was becoming depressed about it. Decided to do the, let's see what happens route.

    We were diagnosed with RS at 10 months and now at 16 months, we still are in the wait and see mode, and very happy I didn't listen to that one doc. I love coming here for hope and inspiration, thank you!

  2. I am so glad that our experiences give you hope. Had we listened to those stupid doctors imagine what we would have missed out on!!!