tag:blogger.com,1999:blog-7211877405615199911.post5347554773299559068..comments2023-10-14T13:02:24.235-07:00Comments on Life with Rhombencephalosynapsis: Our AppointmentKristenhttp://www.blogger.com/profile/08397695241403505531noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-7211877405615199911.post-79450738810107151482012-07-30T21:59:46.258-07:002012-07-30T21:59:46.258-07:00Hi Kristen, I'd like to join as well but I'...Hi Kristen, I'd like to join as well but I'm not your anonymous writer! I'm Midge Markey, my boy Wyatt is 4 (5 in a couple of weeks)and was born with RS plus Hydrocephalus. Thank you!Midge Markeynoreply@blogger.comtag:blogger.com,1999:blog-7211877405615199911.post-44641153136370143312012-03-12T11:26:06.917-07:002012-03-12T11:26:06.917-07:00Hi Anon - Thanks so much for posting. You can e-ma...Hi Anon - Thanks so much for posting. You can e-mail me your FB name and I will make sure you get into the group!Kristenhttps://www.blogger.com/profile/08397695241403505531noreply@blogger.comtag:blogger.com,1999:blog-7211877405615199911.post-20346785746338850592012-03-10T08:30:41.679-08:002012-03-10T08:30:41.679-08:00Hang in there. I know it's hard, I have been ...Hang in there. I know it's hard, I have been there or I should say, I am there. I have done the appointments. Have hope, it does get better! My daughter is 10 now. I read through your blog and It tells what my life has been. I sent a request into facebook for the support group, but have not heard back.<br /><br />Smile & love your daughter everyday. She is different for sure...but in a very good special way! :) We are blessed to have this opportunity. God knew we could handle it and thats why we are the lucky ones.Anonymousnoreply@blogger.com