tag:blogger.com,1999:blog-7211877405615199911.post2822459454818333911..comments2023-10-14T13:02:24.235-07:00Comments on Life with Rhombencephalosynapsis: "The Appointment"Kristenhttp://www.blogger.com/profile/08397695241403505531noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-7211877405615199911.post-14954447107197816142013-05-13T15:42:02.858-07:002013-05-13T15:42:02.858-07:00My son is 30 years old with RS. He had failure to ...My son is 30 years old with RS. He had failure to gain weight also. They thought he was burning off twice as many calories as other kids. He was born 7.6lbs and was only 11lbs at a year. As a young teen he was probably 3 and a half feet tall. We found out he was three years growth delayed. We did testosterone therapy and he grew quite well to now being about 5'9" tall. I left tbe decision up to him when he was a teen. At first he said no but then when he got teased he changed his mind.Anonymoushttps://www.blogger.com/profile/15944893727119837665noreply@blogger.com