tag:blogger.com,1999:blog-7211877405615199911.post2117090812314878075..comments2023-10-14T13:02:24.235-07:00Comments on Life with Rhombencephalosynapsis: Research StudyKristenhttp://www.blogger.com/profile/08397695241403505531noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-7211877405615199911.post-68931974430833625612010-10-21T19:31:20.802-07:002010-10-21T19:31:20.802-07:00Jason - Yes, that's the one. :D
Let me know ...Jason - Yes, that's the one. :D <br /><br />Let me know if there is anything specific I can answer or blog about. I was hoping by blogging about it more information would be out there.Kristenhttps://www.blogger.com/profile/08397695241403505531noreply@blogger.comtag:blogger.com,1999:blog-7211877405615199911.post-41035901060241136222010-10-21T17:40:31.519-07:002010-10-21T17:40:31.519-07:00Is this the one In Washington State? We are due on...Is this the one In Washington State? We are due on Nov 2nd had have been diagnosed with RS. Your posts have help me prepare along with Doctors best opinions. Thank you. JasonAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7211877405615199911.post-11521214876555784652010-10-13T18:49:02.849-07:002010-10-13T18:49:02.849-07:00S - That is a good point. I guess I need to stop f...S - That is a good point. I guess I need to stop focusing on what it could do for us and focus on what it could do period.Kristenhttps://www.blogger.com/profile/08397695241403505531noreply@blogger.comtag:blogger.com,1999:blog-7211877405615199911.post-59759452251086349542010-10-13T10:28:14.302-07:002010-10-13T10:28:14.302-07:00You have to do whats right for you guys right now....You have to do whats right for you guys right now. But you also need to let them know where you're at with it. I'm guessing they dont have a huge pool of people to participate. <br /><br />Often research branches out and finds links where they were not expected, so this could end up being a benefit. Plus if you do this, you could be helping another family who is struggling. But only do it if its not going to be too overwhelming. You have tons on your plate and anyone would understand.Anonymoushttps://www.blogger.com/profile/14293332995122886819noreply@blogger.com